Saff has had pretty bad headaches for a while now, but they got really bad about a month ago. She ended up in the ER, twice, and then had a follow-up with her amazing doctor, who referred us to a pediatric neurologist. Usually, you’d have to wait a few months to get in and be seen, but because she had been in the ER, it was seen as an emergency and her appointment was today. So thankful for that!
The neurologist diagnosed her with chronic migraines, and gave us a plan – and rules to follow. She has to keep a headache journal – how many times each day she’s had a headache, and what she ate 8 hours prior to the headache to see if the triggers are the same. We went gluten-free about 10 days ago, and she’s been headache free for 3 days (they were constant). It could be a coincidence, or it could be helping. Either way, we’re going to stick with it.
Get 8-9 hours of sleep each night – not more. No naps! — This one is going to be difficult, as she wants to sleep all the time.
Eat regular meals. — Again, difficult because she isn’t hungry most of the time (because of the headaches).
Exercise. — Difficult because of the sleep interrupting it, but she does have gym, recess, etc and she does play outside at home so it should be okay.
Drink plenty of water. — This is the easiest one because she drinks water all the time.
Limit Caffeine. — No issues here. :)
Reduce stress. — This is going to be the most difficult because she gets stressed out very easily. The neuro said it could be because of her ADHD, but setting up a better schedule will help reduce the stress.
The visit went well, though I can’t say I love the doctor. He did seem to know what he was talking about. He was very fast. He spoke fast, he moved quickly, etc. He said he was speaking to Saff so fast because that’s better for kids with ADHD (makes them pay attention?).
One thing that I didn’t like was that when he found out we don’t vaccinate, instead of continuing to talk to me, he turned to Sapphire – keep in mind that she is seven – and said “Well I sure hope you don’t die from one of those diseases your mom didn’t protect you against”. Errrr. She’s seven. You didn’t ask why we don’t vaccinate. You didn’t tell us why you think we should. You just told my child you hoped she didn’t die because of our choice. If she was 14, I could see that.. but seven? No. Not cool.
He also said that she was overweight, or creeping towards it, so he wanted us to make sure she got in lots of exercise every day. We’re going to sign her up for dance class in a few weeks. That should help.
We have a follow up appointment in 4-5 months to see how the meds are doing, and he will look at her headache diary at that time. He ordered blood work because he wants to test her thyroid, test her for anemia, etc. We should have those results in about a week. He prescribed her Topomax and Naproxen. One is preventative, the other is to be taken at the first sign of a headache.
All of this is pretty overwhelming right now, on top of the ADHD/ODD/Asthma/Allergy stuff, so we’re just kind of taking it one day at a time. We cut out gluten, red/yellow food dyes, high fructose corn syrup, and lots of processed foods. I’ve gotten a lot of emails and PMs with support, and am very thankful for them. If you have any questions, feel free to ask and I’ll try to answer.